One of the hardest things about Autism is that you can't touch it. You can't put your finger on the one thing that defines it and say - this is Autism.
Instead you spend a lot of time worrying and then feeling guilty for being the one to suspect that there is anything wrong with your child - you feel you are betraying them.
So when you finally get around to seeking out some answers, the last thing you need is an 18 month waiting list for diagnosis.
Or some drongo handing out reasons like "you're just a bad parent"
"Your kids watch too much TV - particularly (and specifically in my case) - Teletubbies!"
"you must have eaten the wrong things, had too many fillings, used the wrong shampoo, had too much wine - while pregnant"
(if I didn't have too much then, I have made up for it now!)
And my favourite (at the moment) is "you do too much Facebook- that causes autism"
Autism is "So Hot Right Now" that it seems everyone has an opinion (meaning soundbite)
And Parents Don't need it!!!
As my my blogger friend Dr Wende said:
"I wonder how much less "wreckage" there'd be if parents got to skip the self-blame step and go straight to coping. That doesn't mean I think day-to-day coping is easy... but sheesh... self-blame (especially unnecessary self-blame) makes everything harder.
So now it's time to straighten things out-
Bring banners. Bring placards. Bring your family.
Represent someone who can’t attend.
Mark this important date in your diary:
Meet Up Temple Place 1.30 pm Saturday 28th March 2009
Rally Finishes 4pm
For more information go here.
And to my london based fashion bloggers; if you could find the time to catch the tube to Temple and add my feet to the masses by proxy, I would be much obliged!
xx
UPDATE: Casdok has posted a lovely album on Facebook with Cas and C marching today! Big smiles, so proud!
Instead you spend a lot of time worrying and then feeling guilty for being the one to suspect that there is anything wrong with your child - you feel you are betraying them.
So when you finally get around to seeking out some answers, the last thing you need is an 18 month waiting list for diagnosis.
Or some drongo handing out reasons like "you're just a bad parent"
"Your kids watch too much TV - particularly (and specifically in my case) - Teletubbies!"
"you must have eaten the wrong things, had too many fillings, used the wrong shampoo, had too much wine - while pregnant"
(if I didn't have too much then, I have made up for it now!)
And my favourite (at the moment) is "you do too much Facebook- that causes autism"
Autism is "So Hot Right Now" that it seems everyone has an opinion (meaning soundbite)
And Parents Don't need it!!!
As my my blogger friend Dr Wende said:
"I wonder how much less "wreckage" there'd be if parents got to skip the self-blame step and go straight to coping. That doesn't mean I think day-to-day coping is easy... but sheesh... self-blame (especially unnecessary self-blame) makes everything harder.
So now it's time to straighten things out-
"OPEN YOUR EYES TO AUTISM”
FOR WORLD AUTISM AWARENESS DAY (WAAD)
"STAND UP FOR AUTISM"
Saturday 28th March 2009.
FOR WORLD AUTISM AWARENESS DAY (WAAD)
"STAND UP FOR AUTISM"
Saturday 28th March 2009.
2pm
TEMPLE Tube Station
LONDON
TEMPLE Tube Station
LONDON
Bagpipers will lead us off at 2pm from Temple Place (Behind Temple Tube Station)
via Victoria Embankment, Bridge Street, and Parliament Street to Whitehall,
stopping shortly at DoH HQ Richmond House,
Then on to deliver Mandates at Downing Street.
Delegated parents and children will be met by Maggie Darling and taken to No 11 to meet The Chancellor Alistair Darling
then onto the Strand and Duncannon Street ending at Trafalgar Square
via Victoria Embankment, Bridge Street, and Parliament Street to Whitehall,
stopping shortly at DoH HQ Richmond House,
Then on to deliver Mandates at Downing Street.
Delegated parents and children will be met by Maggie Darling and taken to No 11 to meet The Chancellor Alistair Darling
then onto the Strand and Duncannon Street ending at Trafalgar Square
Bring banners. Bring placards. Bring your family.
Represent someone who can’t attend.
Mark this important date in your diary:
Meet Up Temple Place 1.30 pm Saturday 28th March 2009
Rally Finishes 4pm
For more information go here.
And to my london based fashion bloggers; if you could find the time to catch the tube to Temple and add my feet to the masses by proxy, I would be much obliged!
xx
UPDATE: Casdok has posted a lovely album on Facebook with Cas and C marching today! Big smiles, so proud!
Comments
Must finish my banner and then i am off to the march!
And I think I understand you dear, everybody has something to say even if they had just heard about something they become experts.
Like I hear about Alzheimer's.....
Oh I just laugh with the "you do too much Facebook- that causes autism". It really is for laugh, isn't it????
Have a great weekend, love
Luv ya
xoxo
Cas, I am so proud of you and C. Can't stop smiling!
xx
Had I known about the march I would have loved to have stomped my pieds for you. And of course you can use my first name!!
Thanks for sharing us this info..;D
"you do too much Facebook-that causes autism"?? is it true?!=)
I read Casdok's blog and it seemed to go off well, united all the disparate autie groups behind some very poorly thought out bagpipers!
Summer and Supermama: there is a "cause" a week practically because it makes good copy and if it is a slow news day the media pick it up.
But SuperMama! I love that comment, I will be sure to use it v.soon.
xx
And in honor of La Bellette I am settng up a facebook group called:
"Half Arsed Things that People tell You Causes Autism"
it is a cross continental drinking game and whenever someone posts a new stupid reason on the wall, we all get a drink.
xx