Friday, April 18, 2014

Getting to know Cahir

I have been getting to know Cahir this month, via his Mum’s facebook page. I will let her introduce him: 

"Cahir is 7 years old he is non-verbal and has Autism. Cahir has no danger awareness and for 7 years we have lived in the world of Autism.  If Cahir spends one minute in the care of another person he comes with an information leaflet of do’s and don’ts:

Cahir can have these crisps, Cahir can have chicken, Cahir can’t have milk or dairy, Cahir can’t be left in a room unattended, don’t let him near water...

 My family and close friends all know Cahir’s Autism. 

You find that that’s all anyone knows about Cahir including me is what we can’t let him do.

Most days all I ever do is get through the day making sure the doors are locked and keeping him safe hoping when we put him to bed for the night that he will sleep…….

It’s April Autism Awareness/Acceptance month and I had no energy left

I wanted to do something for Cahir and I thought instead of posting facts and slogans about Autism and how it affects my son, why don’t I get to know Cahir?

Take this time and look past the Autism past the “he can’t do this”  and really get to know him,

and I discovered a funny wee man that rules the house; the things he does amazes me.

His personality shines through everything else and I never took the time to really look at him before this month has shown me Cahir and as family and friends are getting to know him so am I and I’m loving it."

Kathleen Coyle, Donegal, Ireland.

April 1st

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7th April

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11th April

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16th April

Wednesday, April 9, 2014

Meet our next Autism Star: and he is Messy and Beautiful

All kids write on walls at some point. A typical wall is blank, boring and just asking for an extra splash of color like a canvas and children are more than willing to help rectify that problem. 

Obviously you need a snack while you help decorate

Sometimes, they even help repeatedly before they tire of hearing flustered adults critiquing their masterpieces and using words like “mess”, “again?” and “Do you have any idea how much paint costs?” At some point though, it does end. 
A fresh coat of paint is splashed on the wall and everyone goes about their business with a funny story, unless you live at my house.

My six year-old son has classic autism. It was very difficult getting him to write when he was younger, except on the wall. I cleaned and painted a lot. At first they were just scribbles, but then a trend became very clear.

My little guy loves logos. Not just any logos, he adores children’s television production logos. 

Every wall of our home has been stamped with logos from Disney, Nickelodeon, Nick Jr., Noggin, PBS Kids, PBS Kids Go!, WGBH Boston, Treehouse Productions, Cookie Jar, The Learning Box , Sprout, Baby Einstein, Corporation for Public Broadcasting and from “viewers like you, Thank you.” 

He adores them in a way that other kids love dolls, trucks and sports. He will watch logo taglines and credits repeatedly until he thinks he is ready to recreate the logo and then it appears everywhere --not only on the walls, but on schoolwork, any scraps of paper laying around, the computer monitor and even an IEP draft. 

He got a logo book for Christmas that gets carried around the house and is also serving as a great teacher of finding things alphabetically.


His handwriting at school has progressed to the point that my husband and I have to ask our other children if they wrote things, it’s indistinguishable from them now. So, at some point I will need a whole lot of paint, but right now I am perfectly happy letting him create a logo haven in our home. Progress can be messy and beautiful at the same time.

Cynthia Gregory is the mother to three equally fabulous kids and loves sharing the fun. She just started an Instagram account and would love some company,

Friday, April 4, 2014

Meet the first of our April Autism Superstars: on Mitch's Autie Walk

Hi my name is Mitchell Bourke and I am 12 years old, I have Autism, Schizotypal Disorders, Every 
form of Dyslexia, Separation Anxiety Disorder. It has not always been easy for me in fact I tried to 
commit suicide a few years ago, I'm so glad now that it didn’t happen.

I am the one who started Mitch’s Autie Walk, it started because a friend of the family told my mum 
that funding had fallen through so I came up with the idea to walk from one side of town to the other approx. 20 kms, to raise the money myself, my goal was $25,000. It started really fast and I had to tell my story to lots of people over and over again it was really hard to do this, we were getting some cheques off some important people and some of the businesses that I contacted were donating items for an online auction, it was awesome.

Part of the preparations: Asking people for sponsorship.

The night before I was excited, nervous and worried as I didn’t know if I could finish and would let people down. Mum said to me it didn’t matter whether I took one step or not as I had done more than anyone has imagined and that everyone was already so proud of me. I had trouble sleeping and mum woke me at 6am so I could have breakfast but I was way too nervous.

We arrived at the start to see my big sister already there, she is a fish, this is my word for amazing, awesome, great, and beautiful and so on, which made me feel so much better.

Then other people started to arrive, it made me really nervous but my sister and her best friend Ash made me feel better. So next we were on our way and I can remember mum laughing and saying we were walking too fast. We had people that tooted and waved along the way, we had a group of cyclist that had collected and all stopped to give me the money and they all clapped it was so so good. We arrived at the lake and we were having a rest stop and a man just walked up and said hey mate you are doing a good job and gave me $50 he had driven so far to do this I couldn’t believe it.

Along the way we met some really lovely people we got the other side too fast and had to stop and have a rest and play, they had to slow me down as we would have arrived at the end before the time that we said. We left there and got to Kangaroo Flat where I had to have some fries lol and then started heading to the finish line, I had an anxiety attack about 2 kms out as I knew that there were lots of people at the end, I got myself so worked up that I couldn’t breathe properly, mum helped me through this as she always does, we got to the end and I felt warm and fuzzy inside, I was so pleased to see everyone, I had done it.

Exhausted at the end of the walk, with big sister.